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Prelief- IC

I just want to tell all the IC’er’s out there that this stuff helps….a lot! I actually forget to take these little tablets, but when I do, it makes a huge difference. Preleif has really helped me a lot in the past. I just need to remember to keep it with me and use it.

Seriously, buy some and see if it helps you prevent pain. It is suppose to help neutralize acids in any foods or drinks you may want to eat. Take 2-4 tabs before you start to eat or drink. It really helps when you want to have some wine or spicy foods.

I think I got out of the habit of using it because I was doing good and hadn’t had a flare-up in a while. I’m back on it again. I have been having pain off and on for about 3 months now. I know why too. Since Dad died in June, I have been having flare ups a lot more. Stress.

I don’t think you can get it in Canada yet. I slip across the line and grab it at any drug store or Walmart. Costco might have too. The guy who makes this also made Beano and “Lactaid Milk” But he has sold those parts of the company. We have Beano in our home all the time. It does wonders for those dinners with a lot of onions. You know what I mean…..LOL.

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Another reason to Celebrate

A 'No Smoking' signImage via Wikipedia

Seven years ago on Gregg’s birthday I quit smoking. It was my gift to him that year. Since then I tried 2 times to smoke in that first year and each time I puked my brains out,…lol. I smoked for 22 years, that half my life if anyone is counting. I did quit with both pregnancies, but started up soon after again. I tried many times over the years to quit. It just never happened. I guess I was too stressed out in my life to every be able to quit. It was my stress relief. I owe it to Gregg for helping me quit. He wasnt too sure I would do it at first, but he supported me through the rough spots. It was also a big pain with my IC. Made it a lot worse.

I’m so happy I dont have that dirty disgusting habit anymore. When you are a smoker you dont really know how bad it is. Your clothes stink, your hair stinks, your breathe stinks, even your skin stinks. Perfume or cologne doesnt help, just gives it a funky stink. Then there is your home. Everything stinks inside your home and car. Even your pillows in your bed stink. Your fridge absorbs the odor every time you open it. You can wash your clothes over and over and they still stink. I think you get the idea.

So if I can quit after being a 2 pack a day smoker then I am sure others can too. Get help from your Doctor if you have to, but to be honest, cold turkey is the best way. I did it and it was hard the first few weeks but then it slowly got easier. At 6 months I took all the money I saved and bought a fish tank and some fish as a gift to me.

You know the best out of all of this? Gregg and I have saved so much money and been able to own a home a new car and even go on 2 trips to Mexico. If I was still smoking I would be spending 500.00 a month. What a waste of money that would be. Cant hardly wait till we are back in Mexico!

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A New Page

I have started a new page on IC. I will be adding to it when ever I can or find out new information. It will be a work in progress. If anyone has questions please ask and I will try to help as best I can. I sure hope that this will help the many IC sufferers out there that end up at my blog. I know its hard to find the right answers to your questions. I’m going on 10 years of dealing with this, so I do know what I am talking about.

M.R.I. & I.C.

Jericho Beach, Vancouver, BCImage via Wikipedia

We are home. I just climbed out of the tub. My I.C. started at noon. 🙁 I was stressed out about doing the M.R.I. Normally I dont have a problem doing any of these scans but the minute I was inside the tube I freaked out. I felt like I couldnt breathe. So I was taken out and I relaxed, closed my eyes and went back in. I kept my eyes closed the whole time. I knew that if I opened them I would see how close the walls were and I would want out again. It took about 30 minutes and it was done. I’ll get the results in about a week. So that tiny bit of stress started up all this pain. Stupid, I know.

After that we drove into Vancouver. Went to Kitsilano beach and had a snack. Watched all the day camp kids playing in the water. Reminds me of when I was a kid in the summers and how we used to go to day camps. Not because we had to, we just went along for the fun. Back then we would go to the Sunset community center and hang out and do stuff for free.

After that beach we drove down the road and stopped at Jericho Beach for a few minutes and then drove all the way down to UBC and then back to downtown. We parked under Pacific Center and  we headed for a quick drink at the food court. Then I went to H&M while Gregg went to the Apple Store. I saw many items I wanted to buy, but the line up for the fitting rooms and the cashiers were at least a dozen or more people each. Maybe next time. My I.C. was getting bad by this time. I walked out of the store and told Gregg I needed a drink and to relax for a bit.

We grabbed a cold drink and headed back to the car. I had taken my pills when we arrived at the mall, but they werent helping. We decided I needed to get home. When it hurts this much there is nothing I can really do. I just want any clothes that are touching me to be removed and to have a warm bath.

So now we are home and Gregg is making some bread that I can smell already. Not sure what flavor it is. I think he feels like a Baker man with that bread machine…hehehe Anyways, I’m off to lay down and read a new book I just picked up. Ta-Ta!

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Interstitial Cystitis

UPDATE- I have a page you can go check out with more info.

Interstitial Cystitis, not easy to say So we call it “IC” a lot simpler. I have noticed a lot of people searching this subject and ending up at my site to read my past posts. So I am going to do an update on the subject today. Reason for this is because I am having a bad flare up again.

Since last week when my sciatica nerve acted up it also started up my IC. I thought that it might go away after a day or two, but it has only gotten worse. I think its also related to the fact that I am getting a bit stressed about my dad’s condition. I know he is going to be gone any day now and its hard to think about much else.

So, what are the symptoms of IC? First you might think its a bladder infection. It does feel similar. You feel the need to pee constantly. Even when you have just gone. When you pee it’s painful. It burns on the way out and as the urine moves out of your bladder, the bladder starts to feel like its throbbing. There is a medication you can take to help with this pain. In Canada you can only get it from the doctor. As far as I know there is no over-the-counter pill. (In the USA its called “Uristat”).Ask your doctor for a pill called “Pyridium” (phenazopyridine). This pill is red and about the size of a smartie/M&M. You feel a difference within 30 minutes of taking it. Take it and drink a big glass of water with it to help it move through your system and into your bladder as fast as possible. Now the next time you go pee dont get worried about the bright orange color. LOL…its just the dye from the pill. It helps you to know when its in the system and when its gone. When your pee is back to normal that means the pill is out of your body. One pill will last up to 4 hours depending on how bad your IC flare-up is. I find that when mine is really bad I need to take another pill at 3 hours. Its best not to over do it on these pills. I have taken up to 5 in a day for 6 days in a row, but that was when my IC was at its worst. There are other symptoms like low back pain and all over body aches. For me its hard to tell since I have all over body pain on a daily bases. I do notice that my lower back and pelvic area hurt far worse when I flare-up.

There are many medications that help treat IC. I had to go through a number of them till I found the right one for me. The most common pills given for IC are antihistamines and antidepressants. I’ve used both and found that they both worked, but the antidepressants stopped working after a year. I now use my little green pill called hydroxyzine. This has been a life saver for me. I usually only need to take one pill before bedtime but on flare-up days I take one in the morning too. I’ve been on this pill for about 4 years now. As I understand it from what my Urologist has said, I am one of the lucky ones that this works for me. I guess it has no effect on certain people.

There are some things you can do to help prevent a flare-up or to lessen the pain. I have experimented a lot with the things I eat. I noticed that there are foods that will trigger my IC within 20 minutes of eating it. These are a  few.

  • Spicy foods
  • alcohol
  • tomatoes (except roma)
  • caffeine
  • aged cheese
  • milk chocolate
  • apples
  • any citrus fruits
  • cranberry juice

Those are the main offenders for me. There is also  MSG. Anything like BBQ sauces and dressing that have vinegar in them. And for some unknown reason I cant drink tap water. Could be that the chlorine is the problem or the fluoride. Not sure, so I drink bottled water. I have also realized that wearing tight non-breathable clothes or things that will make my body temp go up, will cause a flare-up. The worst thing out of all the ways a flare-up can start would have to be STRESS. Dont get stressed! I will say this again, dont get STRESSED. Stress is a major symptom for most IC sufferers. As long as you let stress into your body it will keep your IC in active mode. I know its hard not to be stressed in life. I have found a way to deal with it. I know when its coming and I let it into my brain, think about it for a few minutes and then shove it to a corner and deal with it if it really needs to be dealt with. A lot of times there is really no reason to be stressed out about stuff. Little things like “I forgot to take something out for dinner and we are having guests over” is really NO BIG DEAL. Just order in a pizza or go out for dinner. Its not worth a flare-up.

I’m trying to think what else there is I can tell you, but I think I have covered most things. I’m no expert in the subject but I have had this for over 10 years now. The best advise I can give to you if you think you might have IC, is go see a Urologist and have them do all the tests. I found out on my own what was wrong with me by searching the internet. When I finally did get to see a urologist he was very surprised at how much I knew about my condition. He did all the tests any ways. I think the most help I found was on this site “IC-Network“. There are many other sites out there but I think this one is the best.

There are a couple helpful tips I can give you.

  1. If you can find it, there is a pill called “prelief”. Take these pills before you eat and it will help cut back acids in food. It does work, I use them. I havent been able to find them in Canada so I head across the border.
  2. When you feel that constant urge to pee, have a bath and let your bladder muscles relax. Yes you will pee in the bath, but it will help relieve some of the discomfort. You can also add baking soda to the bath to help with the itchy feelings you might have in that area. No bath oils or anything with fragrances.
  3. avoid foods with nitrates in them. Like lunch meats, pepperoni sticks things of that nature.
  4. Also no dark colas. Try to drink diet drinks that are clear. If you really feel you need a soda.
  5. Aspartame is a really bad one too. I use Splenda. It seems to be ok for me. I can handle Aspartame but I try to avoid it as much as I can.

Ok..I think that is about it. If I have missed anything please comment and I’ll help you if I can. Just remember, its not the end of the world if you have IC. There are ways to live with it. I have gone up to 8 months with no flare-ups. So it can be controlled.